Recommended Peripheral Neuropathy Books
Written by one of the world’s leading experts — Professor Gérard Said MD FRCP, Dpt de Neurologie, Hôpital de la Salpêtrière, Paris, France
Peripheral neuropathy is a common medical condition, the diagnosis of which is often protracted or delayed. It is not always easy to relate a neuropathy to a specific cause. Many people do not receive a full diagnosis, their neuropathy often being described as ‘idiopathic’ or ‘cryptogenic’.
It is said that in Europe, one of the most common causes is diabetes mellitus but there are also many other known potential causes. The difficulty of diagnosis, the limited number of treatment options, a perceived lack of knowledge of the subject —except in specialised clinics, the number of which are limited — all add to the difficulties which many neuropathy patients have to face.
Another additional problem for many patients is that once having received a full, or even a partial diagnosis, they are then often discharged back to their primary healthcare team who, in many instances, know little about this condition and how it may impact upon their patients’ lives.
In order to help bridge this gap in medical knowledge and to give healthcare providers a better understanding of this often distressing condition, The Neuropathy Trust has commissioned a new book on this complex topic. Written by one of the world’s leading experts on neuropathy, Professor Gérard Said, it is a ‘must read’ and also a handy reference book for doctors, nurses, physiotherapists, chiropodists/podiatrists and other health professionals.
Peripheral Neuropathy: When the Numbness, Weakness, and Pain Won’t Stop (American Academy of Neurology)
by Dr. Norman Latov, MD PhD published 2007 under the American Academy of Neurology Quality of Life Guide series in 2007.
As Peripheral Neuropathy books go, this is the one to start with. Here is a book that provides the patient with insight into the broad spectrum of the types, causes, and treatments for all the neuropathies. No patient suffering from any neuropathy should fail to read this book as a beginning point in understanding the what, why, how and where of their disease. This knowledge in the hands of the patient provides them insights that are invaluable in increasing their skill in enhancing the patient-doctor partnership as the patient seeks a diagnosis and treatment for their condition. It should become the Bible for any neuropathy patient for it provides both affirmation and encouragement for their walk with an all too often confusing illness.
by Marguerite (Mims) Cushing (Neuropathy Patient) and Dr. Norman Latov, MD, PhD, published 2009.
Many patient ideas to choose from patients who have walked the walk AND can talk the talk. Something here may work for you providing simple relief.
Mims states in her book that we are “connected by common neuropathy dilemmas: Insufficient awareness, demeaning attitudes, and too little useful advice.” This is why the book contains over 365 ideas – one for every day of the year – ideas from the patients who know best – “for living a better life” – while coping with a chronic neuropathy.
The personal stories written by many patients of neuropathy will inspire and educate you about this often confusing disease and the public attitudes which often do a disservice to these patients. Yet it is a book about overcoming the obstacles and unhelpful attitudes with skills we all have available to us. This book is a must read for patients.
Coping with Peripheral Neuropathy: How to handle stress, disability, anxiety, fatigue, depression, pain, and relationships.
by Dr. Scott I. Berman, MD (Psychiatrist and neuropathy patient).
Outstanding insights that only a brilliant psychiatrist with neuropathy could see as he links the practical aspects with his insights into the psychological dynamics of the human condition. He makes the psychological practical and usable for all who suffer from neuropathy.
All profits from this book are donated to the Good Shepherd Rehabilitation Hospital in Allentown, PA, where they care for many children and adults with neurological illnesses. For more information about them, visit www.goodshepherdrehab.org or call 1-888-447-3422.
Dr. Berman developed untreatable CIDP when he was 40 years old. It turned his life upside down and he writes from a perspective of a patient who has been there using his skill as patient and doctor to provide invaluable insight into the many emotional and relational challenges we face. This book provides a great foundation for applying many of the 365 ideas found in Cushing’s book. It is again a must read for patients.
by Deborah Barrett Ph.D.
Paintracking offers a hands-on approach to improving life with chronic pain, whatever the underlying cause. As a sociologist, psychotherapist, and someone with firsthand experience with chronic pain, the author understands the challenges that accompany pain and has devised realistic strategies to fare better.
Paintracking provides a systematic method that empowers individuals to navigate the otherwise overwhelming array of treatment options and incorporate the effective ones into their lives for continued, incremental progress. Its cornerstone is a self-study tool that enables readers to improve. Readers are instructed on how to track and interpret their experience, whether using a pen and paper or the online tool offered as a companion to the book. By cultivating awareness of how their body responds in different situations and to different therapies, readers will become capable self-advocates, able to make informed choices.
Along with the book Dr. Barrett has created a companion web site at: www.paintracking.com
by John A. Senneff
This significant book on Peripheral Neuropathy is one of the earliest patient books written and was published in 1999.
Unfortunately early in my journey to obtain help, I was not aware of this book, but read it late in my journey. It is the most patient friendly book ever offered on the subject. There are many strong points in the book, not the least being that it was reviewed and recommended by numerous neurologists and avoids a lot of technical terms and language that makes other books difficult for many patients to understand.
Written by a retired lawyer with neuropathy, the book speaks the language of one who has “walked the walk and can talk the talk.” Another very strong point is the large consideration of alternative medicine in the treatment of neuropathy symptoms and causes especially given the often limited options in conventional medicine. The book speaks highly of the mission and work of The Neuropathy Association and I highly recommend it to patients as one that they must read.
by Matt Hansen D.P.T.
Matt Hansen D.P.T. designed this home exercise program for patients of all levels of chronic illness and physical limitations. You can read a full description of this excellent DVD in The Neuropathy Journal by clicking here. The creators of Freedom2Move believe that success is oftentimes a matter of perspective, and that all of life’s achievements, regardless of their perceived size, should be enjoyed and celebrated. The company’s mantra, “Keep Moving!” is meant to inspire us all to continue forward and upward in each of life’s pursuits.To purchase a copy ($19.99 +S&H) go to this link www.freedom2move.org then go to the bottom of the page and click ORDER; then click to order Vol. 1; then click on the video and make sure you enter NSN10 in the special order purchase as this will provide 10% of your purchase to support our Neuropathy Support Network, but only if you want that to happen.
by Dr. Jerome Groopman, MD, of Harvard University, published 2007
A doctor who will help you understand how a doctor thinks. More importantly, a book on how you can help your doctor think as they work to help you!
by Peter D. Donahue MD FAAN
Textbook of Peripheral Neuropathy is a practical but authoritative reference for clinicians in any medical specialty who are evaluating and treating patients with signs and symptoms of a peripheral neuropathy. Reviewing the full spectrum of clinically significant neuropathies, the book contains chapters on common and rare forms including mononeuropathy in the upper and lower extremities, mononeuritis multiplex, diffuse and symmetric polyneuropathies, brachial and lumbrosacral plexopathies, and spinal root disorders.
Neuromuscular Disorders of Infancy, Childhood, and Adolescence, Second Edition: A Clinician’s Approach
by Basil T. Darras, H. Royden Jones Jr., Monique M. Ryan, and Darryl C. De Vivo
Neuromuscular Disorders of Infancy, Childhood, and Adolescence, Second Edition: A Clinician’s Approach Neuromuscular disorders are diagnosed across the lifespan and create many challenges especially with infants, children and adolescents. This new edition of the definitive reference, edited by the established world renowned authorities on the science, diagnosis and treatment of neuromuscular disorders in childhood is a timely and needed resource for all clinicians and researchers studying neuromuscular disorders, especially in childhood. The Second Edition is completely revised to remain current with advances in the field and to insure this remains the standard reference for clinical neurologists and clinical research neurologists. The Second Edition retains comprehensive coverage while shortening the total chapter count to be an even more manageable and effective reference.